As an HIBM patient, Caretaker or family member, you are invited to meet with Dr. Zohar Argov, (Hadassah, Israel) over lunch to discuss the latest scientific discoveries in HIBM (GNE-Myopathy). Don't miss this rare opportunity to meet with one the world's leading GNE experts while he is visiting in the U.S.
This is an NDF EVENT. Lunch generously sponsored by Ultragenyx