Workshop Series: Addressing Health Equity through Data Disaggregation 

Disaggregated race/ethnicity data is needed to expose gaps in health equities and inform policies and programs and close those gaps. If you work with health data and want to increase population representation, we invite you to join in our technical assistance workshops to address barriers to disaggregation.

The National Network of Health Surveys, part of the UCLA Center for Health Policy Research, is offering a series of workshops designed to improve the disaggregation of race and ethnicity measures in health data sources. Our goal is to boost the number of subpopulation categories made available to key constituencies working to improve health equity. This is especially important for representing communities that are often “hidden” in large health data sets.

Survey leaders, health data managers, community groups and data users are encouraged to join us for expert-led sessions to work on the more pressing issues of disaggregation.

Upcoming workshops include:

Legal and Regulatory Guidance for Racial/Ethnic Data Disaggregation in Health Data Sets
Wednesday, February 9, 2022 | 11:30 a.m.–1 p.m. PT
Presenters: Ignatius Bau, JD, Health Policy Consultant; Sarah Scholle, Dr.PH, Vice President of Research and Analytics, National Committee for Quality Assurance (NCQA); and Jennifer Park, PhD, Senior Program Officer, National Academy of Sciences
Our panel of experts will discuss the landscape of rules and regulations that provide guidance – and sometimes confusion – on the collection of racial and ethnic information in a variety of health data sources from national surveys to state health departments to hospital level data.

Previous workshops:

Imputation Strategies for Racial/Ethnic Data Disaggregation
Friday, October 8, 2021 | 10:30 a.m.–Noon PT
Presenter: Marc Elliott, PhD Senior Principal Researcher and Distinguished Chair in Statistics RAND Corporation

Disaggregating Racial/Ethnic Data Decision-making: Who, What, When?
Tuesday, August 31, 2021 | 10:30 a.m.–Noon PT
Presenters: Samantha Artiga, Vice President and Director, Racial Equity and Health Policy Program, Kaiser Family Foundation; Joshua Quint, PhD, MPH, Epidemiologist, Disease Outbreak Control Division, Hawai’i Department of Health; and Eva Wong, PhD, Epidemiologist, Public Health – Seattle & King County

Strategies in Mitigating Disclosure Risk in Disaggregated Racial/Ethnic Data
Friday, April 30, 2021 | 10 a.m.–11:30 a.m. PT
Presenter: Darius J. Singpurwalla, Mathematical Statistician, National Science Foundation’s National Center for Science and Engineering Statistics (NCSES)

Collection and Reporting of Data on the Multiracial Population
Friday, February 26, 2021 | 10 a.m.–11:30 a.m. PT
Presenters: Jacqueline Lucas, Health Statistician/Epidemiologist, National Center for Health Statistics (NCHS); and Neil Ruiz, Associate Director of Global Migration and Demography, Pew Research Center

Weighting Strategies for Disaggregated Racial/Ethnic Data
Friday, January 29, 2021 | 10 a.m.–11:30 a.m. PT
Presenters: Ninez Ponce, Director, Tara Becker, Senior Researcher, and Brian Wells, Survey Methodologist, UCLA Center for Health Policy Research

Coding and Machine-Learning Strategies for Disaggregated Racial/Ethnic Data
Tuesday, December 15, 2020 | 10 a.m.–11:30 a.m. PT
Presenter: Scott Comulada, Director for UCLA Semel Institute Center for Community Health, and Associate Professor, UCLA Department of Psychiatry and Biobehavioral Sciences

User Experience Accessing Disaggregated Racial/Ethnic Data
Wednesday, November 18, 2020 | 10 a.m.–11:30 a.m. PT
Presenters: Elizabeth Blomberg, Research Scientist, County Health Rankings & Roadmaps; Marjory Givens,  Associate Director, University of Wisconsin Population Health Institute (UWPHI); and David Van Riper, Spatial Analysis Director, Minnesota Population Center

Question Wording and Response Sets for Disaggregated Racial/Ethnic Data   
Friday, October 30, 2020 | 10 a.m.–11:30 a.m. PT
Presenters: Martha Alexander, Data Communications Outreach Analyst, Bureau of Epidemiology Services, Division of Epidemiology, New York City Department of Health and Mental Hygiene; April Aviles (she/her/ella), Child Health Survey Manager, Bureau of Epidemiology Services, Division of Epidemiology, New York City Department of Health and Mental Hygiene; Stephanie E. Farquhar, Director of Social Research, Bureau of Equitable Health Systems, New York City Department of Health and Mental Hygiene; and Michael Sanderson, Surveillance Surveys Lead, Bureau of Epidemiology Services, Division of Epidemiology, New York City Department of Health and Mental Hygiene

Disaggregated Racial/Ethnic Data: Considerations for Data Collection and Processing    
Wednesday, October 21, 2020 | 10 a.m.–11:30 a.m. PT
Presenter: Ninez Ponce, Director, UCLA Center for Health Policy Research

Support for this workshop series was provided by a grant from the Robert Wood Johnson Foundation.

Register to attend