This event has been postponed for a later date. For information please contact

Bella Aptekar at Cayenne Wellness Center

(818) 377-5120

or email bella@cayennewellness.org

 

 

This two-day program is designed to bring together healthcare providers, consumers and the general community to share information about resources and treatments available in California for individuals with sickel cell disease and thier families.

Who Should Attend

Consumers: Adult persons with sickle cell disease, spouses of individuals with sickle cell disease, parents, guardians and family members of children/adolescents with sickle cell disease.

Health Care / Social Service Providers: Physicians, nurses, social workers, sickle cell counselors, health educators, genetic counselors and other allied health professionals.

Registration fee (due by August 24th):

Physicians: 2 days - $160  / 1 day - $100

Nurses/Social Workers/Other Health Providers/Teachers: 2 days - $80 / 1 day - $50

Consumers - persons with SCD, parents & family members: 2 days - $30 / 1 day - $20

Children (ages 3-12): 2 days - $15 / 1 day - $10

Late Registration (After August 24th)

Please add $20 to the registration fee for each group. A late fee will not be assessed for children (3-12).

Cancellations/Refunds

A $10 processing fee will be deducted for refunds before August 24, 2012

NO REFUNDS WILL BE MADE AFTER AUGUST 24, 2012

 Register NOW - don't delay!!

PROGRAM

Friday, September 7, 2012

7:30am           Registration and Continental Breakfast (provided)

7:50 am          Welcome and Meeting Overview     

8:05 am          Sickle Cell 101 - Susan Claster, MD 

9:30 am          For CONSUMERS "Living Longer"

                       Saving Lives through Patient Support and Advocacy - Nancy Rene'

                       Nutrition and Health - Carolyn Rowley, PhD

                       For HEALTHCARE PROVIDERS (see table)

Physicians	Nurses	Social Workers	Teachers
Treatment & Management of SCD	Treatment & Management of SCD	Treatment & Management of SCD	Understanding the Student with SCD
Susan Claster, MD Richard Shearer, MD	Pat Corley, RN Diane Batham, RN	Teddi Softley, PhD	Lanette Morgan

 

11:30 am          Lunch (provided)

                        Call to Action - Videotaping available throughout the day

12:30 pm         Teen Panel: "Extreme Teen: Real or Unreal?"   

                        Debbie Harris, NP & Trish Peterson, NP                                            

1:30 pm           Complications of SCD in Children - Diane Nugent, MD

1:45 pm           Strokes - Diane Nugent, MD

2:00 pm           Acute Chest Syndrome - Thomas Coates, MD

2:25 pm           Pain: The Pisces Project - Pat Corley, RN

2:40 pm           Break 

2:50 pm           Workshop Sessions

Healthcare Professionals Current NIH Guidelines for Pediatric Care of Sickle Cell Disease	Parents Only Moderated by: Mary Boyd, LCSW	Teens/Young Adults Moderated by: Theopia Jackson, PhD & Calvin Moore
Thomas Coates, MD & Diane Nugent, MD	Growing Into Adulthood: Transitional Issues Dawn Canada, LCSW	Living Successfully with SCD Theopia Jackson, PhD
	Helping Your Child Cope with Pain Lisa Pullens, RN	Transition Dawn Canada, LCSW
	Open Forum	Relationships Theopia Jackson, PhD

 

5:00 pm             Summary, Wrap-up and Evaluations

5:30 pm             Networking Reception

Saturday, September 8, 2012

7:30 am             Registration and Continental Breakfast (provided) 

7:50 am             Welcome and Meeting Overview  

8:05 am             Historical and Medical Overview of SCD - Cage Johnson, MD

9:30 am             For CONSUMERS: "Managing Your Pain"

                          Pain Management - Jackie Carter, RN

                          Depression and Sleep Disorders, Pat Corley, RN & Carolyn Rowley, PhD

                          For HEALTHCARE PROVIDERS (see table)

Physicians	Nurses	Social Workers	Teachers
Comprehensive Care	Comprehensive Care	Comprehensive Care	Understanding the Student with SCD
Osbourne Blake, MD & Thomas Coates, MD	Doris Quon, MD &   Debbie Harris, NP	Mark Goodwin, MSW	Nancy Rene'

 

11:30 am         Lunch (provided) 

                        Call to Action - Videotaping available throughout the day 

12:40 pm         Adult Panel: The Real Deal: Living in the Shadow of SCD"  

                       Deborah Green, Moderator 

2:00 pm          Complications of SCD in Adults - Ward Hagar, MD

2:20 pm          Leg Ulcers - Kazu Susuki, MD

2:40 pm          Orthopedic Aspects of SCD and its Management - Marisa Perdomo, DPT

3:05 pm          Pain - The Pisces Project, Pat Corley, RN

3:30 pm          Workshops (see table)

Health Professionals	Men Only Open Forum	Women Only Open Forum
Current NIH Guidelines for Adult Care for SCD Ward Hagar, MD & Ilene Weitz, MD	Have You Wondered: Are You The Only One?  Robert Brodie, PhD & James Holland, MSW	Let’s Talk Carolyn Rowley, PhD

5:00 pm          Summary & Evaluations

5:15 pm          Adjourn

FACULTY

Diane Batham, RN - Kaiser Permanente Medical Center

Osbourne Blake, MD - Kaiser Permanente Medical Center

Mary Boyd, LCSW - Kaiser Permanente Medical Center

Robert Brodie, PhD - Patton State Hospital

Mary E. Brown - Sickle Cell Disease Foundation of California

Dawn Canada, LCSW - Children's Hospital Los Angeles

Jackie Carter, RN - LAC/USC Medical Center

Susan Claster, MD - Children's Hospital Los Angeles

Thomas Coates, MD - Children's Hospital Los Angeles

Pat Corley, RN - Los Angeles County/USC Medical Center

Leslie von Esch, RN - Loma Linda University Medical Center 

Mark Goodwin, MSW, Montefiore Medical Center

Deborah Green - Sickle Cell Disease Foundation of California

Ward Hagar, MD - Children's Hospital & Research Center Oakland

Debbie Harris, PNP - Children's Hospital Los Angeles

James Holland, MSW - Antelope Valley Hospital 

Thepia Jackson, PhD - Children's Hospital & Research Center Oakland

Cage Johnson, MD - Los Angeles County/USC Medical Center

Lanett Morgan - Retired Christian Educator

Calvin Moore, II - First Presbyterian Church of Los Angeles

Diane Nugent, MD - Children's Hospital Orange County

Marisa Perdomo, DPT - University of Southern California

Trish Peterson, PNP - Children's Hospital Los Angeles

Lisa Pullens, RN - City of Hope Medical Center

Doris Quon, MD - University of California Los Angeles

Nancy Rene' - Retired School Principal

Carolyn Rowley, PhD - Cayenne Wellness Center & Children's Foundation

Richard Shearer, MD - Kaiser Permanente Medical Center 

Teddi Softley, PhD - Miller Childrens Memorial Medical Center/JJCCC

Kazu Suzuki, MD - Cedars Sinai Medical Center 

Ilene Weitz, MD - University of Southern California

PLANNING COMMITTEE

Bella Aptekar

Mary E. Brown

Charles Clark

Pat Corley, RN

Deborah Green

Carla Johnson

Lanett Morgan

Vera Mulkey

Carolyn Rowley, PhD

Contact Information

For more information please contact the Sickle Cell Disease Foundation of California (SCDFC) at (310) 693-0247 or email deborahg@scdfc.org or visit www.scdfc.org. You may also contact Cayenne Wellness Center & Children's Foundation at (818) 377-5120 or email bella@cayennewellness.org or visit www.cayennewellness.org.

Disclaimer: Cayenne Wellness Center and Children's Foundation, the Sickle Cell Disease Foundatino of California, LAC/USC Medical Center, Children's Hospital & Research Center Oakland, California Department of Public Health, Children's Hospital Orange County, Children's Hospital Los Angeles, Kaiser Permanente Medical Center, Northern California Network of Care, University of Southern California, University of California Los Angeles, Montefiore Medical Center, Antelope Valley Hospital, City of Hope Medical Center, Miller Childrens Memorial Medical Center/JJCCC, Cedars Sinai Medical Center and thier staff or affiliates are not responsible for injury or illness resulting from the use of medications or modalities discussed during this edcuational activity.