Saturday May 12, 2012
7pm-11pm
$45 per person
dinner/beer & wine
(you MUST pre-register for this event. Space is limited. We can only fit 250 people!)
Please contact Regina Romanaux,
Rebecca Bascio, Sarah Chalk or Natalie Schickel at kickitkohl@gmail.com
The Event
Please join us for dinner and drinks, a silent auction, a live auction and tons of wonderful family and friends!
We have SPECTACULAR items out for bid!
Also, participate in the raffle for a white Apple 16GB WIFI iPad!
Online Registration has been closed but please feel free to come to the door! $45 per person cash/check ONLY
The Story
This past fall, the Angelo family’s world was turned upside down and inside out when their son, Kohl was diagnosed with a rare brain tumor — D.I.P.G. or Diffuse Intrinsic Pons Glioma. In shock, the Angelo family pressed forward to understand the disease and find the best possible course of treatment for Kohl, an A student, a thriving soccer player, brother to Austin and Branden, and only 11-years old.
To that end, Kohl and his mother Kelly went to St. Jude Children’s Research Hospital in Memphis, Tennessee for eight weeks, where he took the last place in a trial program for children with DIPG. His father Peter came to visit as much as possible as did his brothers, grandparents, aunt, and friends. Kohl endured the pain and discomfort of radiation, chemotherapy, and suffered through weeks of additional distress due to kidney stones.
The good news: The tumor has shrunk almost 60%. Kohl is back in Maplewood, doing things a boy should be doing. He’s begun a new course of treatment at NYU Cancer Institute. As an added measure, Kohl’s new “normal” involves a comprehensive program to strengthen his immune system, under the guidance of a biophysicist focused on beating DIPG. She’s succeeding. Two children under her watchful eye have been “cancer free” for more than three years. This is nothing short of a miracle, and the Angelos are doing everything they can to make their Triplet, the Trifecta of Success.
The bad news: Most of Kohl’s current treatment to tackle the remaining 40% of the tumor and keeping it from advancing is not covered by insurance, and this illness has taken a financial toll. The Angelos are grateful for all that they have received by our wonderful community. Unfortunately, they still need our love, support, prayers and financial assistance. Thousands, likely tens of thousands of dollars will be required to keep Kohl on this current track of treatment.
Read about Kohl's story at CaringBridge here
Tax deductible donations are being accepted through HK Community Fund, a 501 (c)(3) organization. Click HERE
Select a donation amount and hit the DECLINE button!!
You can also donate directly through HK C.A.R.Es, a division of HK Community Fund.
Select the red DONATE button next to HK C.A.R.E. You will be directed to the HK Community Fund PayPay account. Please (this is CRITICAL) reference Kohl's name on all donations. Select "special instructions to seller" at PayPay checkout. Thanks!