Are you living with or caring for someone with congenital adrenal hyperplasia (CAH)? You're invited to a special LIVE webinar...
When
DAY: TUESDAY
DATE: JUNE 28, 2022
TIME: 8:00 PM EST
COST: There is no cost to attend.
This is an online event. A Zoom link will be provided via email upon registration.
Event Sponsor
Living with CAH: Understanding Your Medications, Lab Results & Clinical Trial Opportunities
Please join hosts Jenna Coura, CAH Division Consultant, The MAGIC Foundation, and Ajay D Rao, MD, MMSc, Associate Professor of Medicine, Section of Endocrinology, Diabetes and Metabolism, Lewis Katz School of Medicine, Temple University, as they lead an important conversation around understanding the medications, lab results and clinical trial opportunities around congenital adrenal hyperplasia (CAH).
By the end of the webinar, participants will:
- Better understand the medications prescribed to treat CAH
- Understand why labs are ordered and what they mean
- Increase their knowledge of clinical trials for the treatment of classic CAH
Who should attend? Those living with or caring for someone with CAH are encouraged to attend.
DAY: TUESDAY
DATE: JUNE 28, 2022
TIME: 8:00 PM EST
If you would like to participate, please RSVP by clicking the Register Now! link below. The webinar link will be provided.
There is no charge to attend this informational webinar but registration is encouraged to reserve your spot.
About Our Speakers
Jenna Coura, CAH Division Consultant, The MAGIC Foundation
Jenna Whaley Coura is the parent of a 6-year-old daughter with Classic Congenital Adrenal Hyperplasia. She is the CAH Division Consultant for The MAGIC Foundation and also founded the Bay Area California CAH Families group. She is working to improve emergency response protocols for all patients with adrenal insufficiency. She recently published her ebook, "Welcome to Congenital Adrenal Hyperplasia: A Handbook for New CAH Families."
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About The Sponsor
Spruce Biosciences is developing and commercializing novel therapies for rare endocrine disorders with significant unmet medical need. New this year, Spruce is introducing a quarterly, educational webinar series for patients living with rare endocrine disorders and their caregivers. We strive to support the endocrine community by providing answers to your questions with responses from experts in the field, sharing tips to navigating conversations with healthcare providers, compiling resources that address unmet needs and other concerns associated with the disorders, and furnishing tools that help you make informed choices regarding treatments and clinical trial participation. For more information visit sprucebiosciences.com.
About ThinkGenetic: ThinkGenetic's goal is to shorten the diagnostic journey for those living with an underlying genetic condition and provide practical information and next steps to those already diagnosed. Part of this mission includes partnering with industry and patient advocacy support organizations to facilitate, sponsor, and host educational sessions at family meetings, appropriate conferences, and more. For more information, visit thinkgenetic.com.
