Valerie Rogler
The Chromosome 18 Registry & Research Society 
(210) 657-4968

Becky and Steve Hobby, Conference Chairs

(912) 667-2456 


Sunday July 28, 2013 at 2:00 PM EDT
Wednesday July 31, 2013 at 9:00 PM EDT

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Savannah Marriott 
100 General McIntosh Blvd
Savannah, GA 31401

Driving Directions 

Is This Your First Conference?

We are excited to meet you in Savannah!  We invite you to read our "First-Timer Flier"!



The 20th Annual Chromosome 18 Registry     Family Conference ~ Savannah, Georgia

Registration is now closed.  If you are interested in attending the conference, please contact the Registry office directly at or 210-657-4968.


Hi Chromosome 18 Family Members!

It’s time to begin the planning process for the 2013 Annual Chromosome 18 Family Conference (our 20th), to be held in the beautiful coastal city of Savannah, Georgia.  Our conference will be held downtown at The Savannah Marriott Riverfront, located in central Savannah, close to Lucas Theatre, Johnson Square, and Wright Square. Additional points of interest include Forsyth Park and Cathedral of St. John the Baptist.

Hotel Features. Savannah Marriott Riverfront's restaurant serves breakfast, lunch, and dinner. 2 bars/lounges are open for drinks. Room service is available during limited hours. The hotel serves buffet breakfasts in the restaurant (surcharges apply). Recreational amenities include an outdoor pool, an indoor pool, a spa tub, and a fitness facility. This 3.5 star property has a business center and offers small meeting rooms, a technology helpdesk, and audiovisual equipment. Complimentary wireless Internet access is available in public areas. This Savannah property has 3345 square meters of event space consisting of a ballroom. Guest parking is available for a surcharge. Additional property amenities include a concierge desk, gift shops/newsstands, and express check out. This is a smoke free property.  Becky and Steve Hobby have negotiated free parking and free internet for all Chromosome 18 Conference hotel guests. Thanks Becky & Steve!!!

Guestrooms. 387 air conditioned guestrooms at Savannah Marriott Riverfront feature coffee/tea makers and complimentary newspapers. Beds come with down comforters and premium bedding. Bathrooms feature complimentary toiletries and hair dryers. Wired high speed and wireless Internet access is available for a surcharge. Guestrooms offer phones. 27 inch plasma televisions have premium cable channels and pay movies. Rooms also include electronic check out, irons/ironing boards, and clock radios. Housekeeping is offered daily and guests may request refrigerators.

The conference will kick off on Sunday night, July 28th, with an evening welcome mixer.  The conference will conclude with a farewell dinner dance on Wednesday evening, July 31st.  You won’t want to miss any part of the conference, so please plan accordingly.

There is so much to do in Savannah, making it a great family vacation destination.  If you want to take advantage of the sights and activities around Savannah., we suggest staying a few days either before or after the conference days, since many of these plans require a whole day.  Click on this link to learn more about Savannah

We are organizing three fun filled days of activities for the kids and exciting sessions for the adults. There  will be an ice breaker session for our affected children (ages 9-16) as well as a session for our younger siblings (7-13).  There will also be a planned mom’s night out (grandmas, aunts and friends are welcome too) and Dad’s night out (grandpas, uncles and friends, too).

Our conference is sure to be filled with great presentations.  Of course, we will have many of our favorite sessions that appear at every conference such as our sibling panel, young adult panel, Positive Exposure with our good friend Rick Guidotti, research updates, and recognition of our shining stars.   Stay tuned for details on our conference schedule and featured sessions.  Registration is now open.

We look forward to seeing everyone!


We are excited that this year's conference will have a wide range of speakers and topics.  There is definitely something for everyone!  Take a look at our schedule for our three days in Savannah!

Download schedule here.


Room registration for rooms at the Savannah Marriott Riverfront where the conference will be held is open now.  The Marriott has given us a reduced rate of $119.00  Click  HERE to book your reservations on-line.  You may also call and book your reservations now by calling (912) 233-7722 and mention you are with The Chromosome 18 Conference.  So many families have said staying in the same hotel as the conference and with the other families is critical for your "Conference Experience", so please reserve your room early.  Your reservation is your responsibility.  First come first serve! Hope to see you all in Savannah!

Transportation to and from Airport

Discounted rates have been secured with a shuttle service for transportation from/to the airport and from/to the Marriott.  The link is attached below.  The shuttle leaves the airport hourly beginning at 10 am and ending at 9 pm.   It leaves the Marriott hourly beginning at 5 am and ending at 7 pm.  The standard rates are $20 per person one way, and $30 per person round trip.  The rates for our attendees will be $17.50 for an individual reservation one way, and $25 for an individual reservation round trip (the website will only deduct the $2.50/$5.00 once per reservation, regardless of how many people are on the reservation).  Although a bit timely, it may be worthwhile for a party of 4, for example, to make 4 separate reservations, one for each family member.  Of note, there is only room for one wheelchair-dependent passenger per shuttle.  So, K Shuttle has asked that anyone in a wheelchair make that clear when making a reservation.  The link has the discount built in, but it will not show up until the shuttle times have been chosen.

Airline and Rental Car Discounts

<Airline Discount Codes> 


American Airlines: Click HERE for  5% discount.  Choose the "More Flight Search Options" tab at the bottom of the big blue box on the general reservation page, and insert the promotion code 9773DB in the promotion code box.

United Airlines Click HERE for a 2-10% discount.  Click on the "Advanced Search" tab at the bottom of the big blue box on the general reservation page, insert ZNZA881619 in the offer code box.

Delta Airlines Click HERE for a 5-10% discount on non-U,L, and T class fares.  Even if you purchase a U,L, or T class fare, please use the event code during your purchase, as it will still benefit The Registry!!!  Click on the "More Search Options" tab at the bottom of the big white box on the general reservation page, insert NMF4L in the meeting event code box.

<Rental Car Discount Codes>

Avis:   Click HERE for Avis Discount Codes

 Hertz: Click HERE for Hertz
At the bottom of the reservation page, click "Enter a Discount or Promo Code".  In the space for 
Convention Number, enter:  022Q6111.

National: Click HERE for National

Alamo: Click HERE for Alamo


Corporate Kids will be providing the childcare for this year's conference.  We will be having a hang out space for kids (age 13 and up) that will be supervised by Corporate Kids.  In addition to the regular childcare areas, there will be a supervised hang-out space for teens and young adults (age 13 and up).  It will be a place where the kids can sign themselves in and out (with their parents' permission).

There will also be a time when the affected kids ages 9-16 will be pulled out of daycare for special "ice breaker activities" as well as another time where the sibs (ages 6-12) will be pulled out of daycare for their own "ice breaker" activities.

UPDATE: Schedules for childcare activities are now available!

Infant/Toddler Schedule
Kids' Camp
Teen Camp

Frequently Asked Questions

Attendees frequently have questions about what to expect at the conference and how registration works.  We invite you to read our FAQ about the conference and contact us with any additional questions!