3rd Annual Walkathon for CDKL5 Research!

Saturday August 6, 2011 

IFCR all proceeds logo

When

Saturday August 6, 2011 at 8:00 AM 
to
Saturday August 6, 2011 at 12:00 PM 

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Where

Richmond High School track 
35320 Division
Richmond, MI 48062
 

 
Driving Directions 

Contact:

Katheryn Elibri Frame

734-426-7789

keframe@cdkl5.com 

OR 

Janet Baker

 248-245-0614

janeepie@hotmail.com

 

3rd Annual Walkathon for CDKL5 Research 

Please join us for the 3rd Annual Walkathon for CDKL5 Research!

CDKL5 is a devastating, rare genetic disorder that effects girls and boys in infancy, and deprives them of any kind of a normal life.  This disorder causes relentless seizures, severe neuro-developmental impairment, and many other medical problems, such as blindness, feeding difficulties and scoliosis.  Most of these children will never walk, talk, or feed themselves.  They are dependent on others for everything!

Please, help us find a cure!  We can't do it without you!  

In the past year, IFCR has begun critical research projects thanks to your generous support, but we can't stop yet.  There is so much more to do, but there is an equal amount of hope....together we can find a cure for our children.

All proceeds go directly to research, and your contributions are 100% tax deductible.

We encourage you to bring your family, friends, co-workers and acquaintences to help us celebrate our children and raise awareness of CDKL5.  There will be lots of family fun and activities, and lots of wonderful raffle prizes!  We are raffling off an Apple iPAD2, don't miss your chance to win!!!


When: Saturday, August 6th, 2011  (rain or shine)

Where:  Richmond, MI at the high school track

Time:  8am - 12pm

Who: All are welcome!

This event is free for all who attend, but DONATIONS are deeply

appreciated!







 Event Schedule

                                                    8:00am   Registration, Continental breakfast

 9:00am   Walk begins

 10:00am   Light refreshments

 Raffle - great prizes, including an apple iPAD2!!!

  T-shirts for sale

 Live music

 Clown and balloons

 Face painting

Popcorn, sno cones and cotton candy!