Katheryn Elibri Frame
734-426-7789
keframe@cdkl5.com
OR
Janet Baker
248-245-0614
janeepie@hotmail.com
Please join us for the 3rd Annual Walkathon for CDKL5 Research!
CDKL5 is a devastating, rare genetic disorder that effects girls and boys in infancy, and deprives them of any kind of a normal life. This disorder causes relentless seizures, severe neuro-developmental impairment, and many other medical problems, such as blindness, feeding difficulties and scoliosis. Most of these children will never walk, talk, or feed themselves. They are dependent on others for everything!
Please, help us find a cure! We can't do it without you!
In the past year, IFCR has begun critical research projects thanks to your generous support, but we can't stop yet. There is so much more to do, but there is an equal amount of hope....together we can find a cure for our children.
All proceeds go directly to research, and your contributions are 100% tax deductible.
We encourage you to bring your family, friends, co-workers and acquaintences to help us celebrate our children and raise awareness of CDKL5. There will be lots of family fun and activities, and lots of wonderful raffle prizes! We are raffling off an Apple iPAD2, don't miss your chance to win!!!
When: Saturday, August 6th, 2011 (rain or shine)
Where: Richmond, MI at the high school track
Time: 8am - 12pm
Who: All are welcome!
This event is free for all who attend, but DONATIONS are deeply
appreciated!
Event Schedule
8:00am Registration, Continental breakfast
9:00am Walk begins
10:00am Light refreshments
Raffle - great prizes, including an apple iPAD2!!!
T-shirts for sale
Live music
Clown and balloons
Face painting
Popcorn, sno cones and cotton candy!