Katheryn Elibri Frame
630-926-1189
keframe@cdkl5.com
Please join us for the 6th Annual Walkathon for CDKL5 Research!
CDKL5 is a devastating, rare genetic disorder that effects girls and boys starting in infancy, and deprives them of any kind of a normal life. This disorder causes relentless seizures, severe neuro-developmental impairment, and many other medical problems, such as blindness, feeding difficulties and scoliosis. Most of these children will never walk, talk, or feed themselves. They are dependent on others for everything! Many have feeding tubes for nutrition, and some children even require the help of a ventilator to help them breathe.
Please, help us find a cure! We can't do it without you!
In the past year, IFCR has been engaged in critical research projects thanks to your generous support, but we can't stop yet. There is so much more to do, and we have an abundance of hope....together we can find a cure for our children!
All proceeds go directly to research, and your contributions are 100% tax deductible.
We encourage you to bring your family, friends, co-workers and acquaintences to help us celebrate our children and raise awareness of CDKL5. There will be lots of family fun and activities, and lots of wonderful raffle prizes! We are raffling off an Apple iPAD mini, don't miss your chance to win!!!
When: Saturday, September 13, 2014 (rain or shine)
Where: Hudson Mills Metropark, at the Activity Center area.
Dexter, MI 48130
Time: 9am - 1pm
Who: All are welcome!
This event is FREE for all who attend,
but DONATIONS are deeply
appreciated!
Event Schedule
9:00am Registration and Continental breakfast (coffee, breakfast pastries)
10:00am Walk begins
11:00am Light refreshments and Lots of Family Fun
Raffle - great prizes, including the Apple iPAD mini!
Live music
Clown and balloons
Corn Hole Toss
Playground, Volleyball courts
Tennis (bring your rackets and tennis balls)
and much more....
12:15pm Raffle drawings