6th Annual Walkathon for CDKL5 Research!

Saturday September 13, 2014 


All Proceeds benefit the


Saturday September 13, 2014 at 9:00 AM 
Saturday September 13, 2014 at 1:00 PM 

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Hudson Mills Metropark 
8801 N. Territorial Rd.
Dexter, MI 48130

Driving Directions 


Katheryn Elibri Frame




6th Annual Walkathon for CDKL5 Research 

Please join us for the 6th Annual Walkathon for CDKL5 Research!

CDKL5 is a devastating, rare genetic disorder that effects girls and boys starting in infancy, and deprives them of any kind of a normal life.  This disorder causes relentless seizures, severe neuro-developmental impairment, and many other medical problems, such as blindness, feeding difficulties and scoliosis.  Most of these children will never walk, talk, or feed themselves.  They are dependent on others for everything!  Many have feeding tubes for nutrition, and some children even require the help of a ventilator to help them breathe.

Please, help us find a cure!  We can't do it without you!  

In the past year, IFCR has been engaged in critical research projects thanks to your generous support, but we can't stop yet.  There is so much more to do, and we have an abundance of hope....together we can find a cure for our children!

All proceeds go directly to research, and your contributions are 100% tax deductible.

We encourage you to bring your family, friends, co-workers and acquaintences to help us celebrate our children and raise awareness of CDKL5.  There will be lots of family fun and activities, and lots of wonderful raffle prizes!  We are raffling off an Apple iPAD mini, don't miss your chance to win!!!

When: Saturday, September 13, 2014  (rain or shine)

Where:  Hudson Mills Metropark, at the Activity Center area.

Dexter, MI 48130

Time:  9am - 1pm

Who: All are welcome!

This event is FREE for all who attend,

but DONATIONS are deeply


 Event Schedule

9:00am   Registration and Continental breakfast (coffee, breakfast pastries)

10:00am   Walk begins

11:00am   Light refreshments and Lots of Family Fun

  Raffle - great prizes, including the Apple iPAD mini!

 Live music

 Clown and balloons

 Corn Hole Toss

Playground, Volleyball courts

Tennis (bring your rackets and tennis balls)

and much more....

12:15pm     Raffle drawings