Friday, November 8, 2019 at 8:00 AM EST
Saturday, November 9, 2019 at 1:00 PM EST

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DoubleTree Hotel Silver Spring 
8727 Colesville Rd
Silver Spring, MD 20910

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Connie Lee 
Angioma Alliance 

2019 Angioma Alliance National Patient Conference 

Please join us for two days of presentations and conversations about cavernous angioma research and treatment. This meeting is happening concurrently with the International Scientific Meeting, and there will be a shared session and other opportunities to interact with the researchers. 

Find a full agenda at http://angioma.org/documents/DCPatientMeeting2019Agenda.pdf 

Highlights include:

  • With the researchers, attend a joint keynote presentation by Dr. Issam Awad marking the 15th anniversary of the scientific meeting;
  • Hear presentations geared toward patients and their families from leading clinicians and researchers including Dr. Min Park, Dr. Mark Kahn, Diane Darcy, RD, Dr. Kimberly Foley, Dr. Amy Akers, Kristen Dahlem, RN, Tim Considine from Recursion Pharmaceuticals, Dr. Connie Lee, and other speakers to be announced;
  • View posters presenting recent, unpublished research findings;
  • Have an opportunity to meet Scientific Meeting attendees over lunch and at breaks; 
  • Meet other Angioma Alliance members and share stories and tools.

This is a unique opportunity to interact with the research community and to learn about the patient and family role in advancing the search for better treatments. Our International Scientific Meeting attracts every major research laboratory in the world, as well as many leading clinicians.

Early registration through October 7 is $70 per person.
Registration from October 8-November 7 is $80 per person.
On-site registration is $100 per person.

Unfortunately, we will not be able to offer childcare at this event. 


Rooms at the DoubleTree by Hilton Hotel - Silver Spring, Washington, DC are available for a reduced room rate of $149 USD per night for single/double occupancy.

If you reserve using a different discount method (e.g., AAA, AARP, or Hilton Honors), please let us know about your reservation by emailing info@angioma.org so that we can inform the hotel that you are part of our group.     

To make hotel reservations:

  • Reservations by Phone - call the reservations department at 1-800-HILTONS ( or 1-800-445-8667). Please ensure to reference our group name "Angioma Alliance FA19" or, Group Code "AAF" when making reservations.
  1. On the left side, enter arrival and departure dates and click on “Add special rate codes”
  2. In the box that appears for Group Code, enter your three letter code: AAF (all capital letters) 
  3. Click the green button for “CHECK ROOMS & RATES”
  4. Click through the rest of the online reservations process until confirmation of booking displays.