Contact:

Liz McCarthy 
Huntington Study Group 
liz_mccarthy@urmc.rochester.edu
804-269-3204

When

Saturday November 5, 2011 from 8:00 AM to 12:30 PM EDT

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Where

Hyatt Regency Indianapolis 
One South Capitol Avenue
Indianapolis, IN 46204 

 
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HDCRS Day Agenda

8:00-9:00am Poster Setup & Viewing, Continental Breakfast

9:00-9:10am Introduction

9:10-9:40am Keynote Presentation: Mary Edmondson

9:40-10:10am Keynote Presentation: Karen Anderson

10:10-10:20am Platform Presentation: Mark Groves

10:20-10:30am Platform Presentation: Eric Epping

10:30-10:50am Poster Viewing

10:50-11:20am Keynote Presentation: Karen Marder

11:20-11:30am Platform Presentation: Steven Hersch

11:30-11:40am Platform Presentation: Kevin Biglan

11:40am-12:30pm Panel Discussion

 

Workshop Agenda

12:30-1:00pm Lunch

1:00-1:25pm Welcome & Opening Remarks: Charles Sabine

1:25-1:40pm What Does it Mean to be Involved in Clinical Research: Joanne Wojcieszek

1:40-2:15pm Testimonials from Clinical Trial Participants

2:15-2:20pm Project AWARE HD Community Survey Update: Elise Kayson and Shari Kinel

2:20-2:45pm Table Discussions

2:45-3:05pm Presentations from Table Discussions

3:05-3:15pm Summary: Charles Sabine

3:15-3:30pm Meet the Teams

 

Fifth Annual Huntington Disease Clinical Research Symposium 

Organized by the Huntington Study Group

Saturday, November 5, 2011
8:00a.m. - 12:30p.m.
Hyatt Regency Indianapolis
Indianapolis, Indiana 46204 U.S.A.

Huntington disease (HD), a devastating disease that robs people of their mobility, intellect, and sanity, has resisted attempts at treatment since it was first recognized in 1872 as a distinct genetic ailment.  Now, some 135 years later, clinical research into treatments that might alleviate symptoms and/or modify the disease are finally producing glimmers of hope for patients and families affected by the disease.

In recognition of the emerging focus on patient-oriented research, the Huntington Study Group (HSG), comprised of clinical researchers from North America, Europe, Australia, New Zealand and South America, will convene the Fifth Annual Huntington Disease Clinical Research Symposium, to be held on Saturday morning, November 5, 2011 at the Hyatt Regency Indianapolis, Indiana. Poster viewing will be held from 8:00-9:00am with the Symposium officially beginning at 9:00am.

The Symposium will feature keynote addresses by:

  • Mary Edmondson, MD, Duke University Medical Center

  • Karen Anderson, MD, University of Maryland 

  • Karen Marder, MD, MPH, Columbia University

In addition to these keynote addresses, clinical scientists will be presenting their original research on relevant topics of interest to the HD community today. The Symposium will conclude with an open panel discussion, which will present audience members with the opportunity to interact with the day's presenters.

The Symposium is open to the HD community, the public and the press. Pre-registration by October 24th is free. On-site registration is $25.00 and is payable by cash or check at the event.

Scientific Program Committee Leadership
Andrew Feigin, MD, Chair
Feinstein Institute for Medical Research

Blair Leavitt, MD, Co-Chair
University of British Columbia

 

  Please join us after the Symposium for....

Working Together for HD Treatments:
A Clinical Research Workshop
Saturday, November 5, 2011 • 1:00-3:30pm
 
Presented by the:
Huntington Study Group• Huntington's Disease Society of America • Huntington's Disease Drug Works
 
The Focus: The importance of clinical research in the development of new treatments that make a difference for HD.  
Featured Speakers:  Joanne Wojcieszek, MD, Indiana University
                                        Charles Sabine, NBC News Correspondent
                                        Research Participants
Also featuring an open audience discussion covering key questions on motivations and concerns about participating in clinical research and an opportunity to meet and speak with local clinicians. 

Everyone welcome. The HSG will be providing complimentary valet parking at the Hyatt Regency for Symposium/Workshop Attendees. Lunch provided to all registered participants.