Liz McCarthy 
Huntington Study Group


Saturday November 10, 2012 from 8:00 AM to 3:30 PM PST

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Hyatt at Olive 8 
1635 8th Avenue
Seattle, WA 98101

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The 6th Annual HD Clinical Research Symposium been accredited by the Accreditation Council for Continuing Medical Education, via the University of Rochester School of Medicine and Dentistry. The University of Rochester School of Medicine and Dentistry has designated that participants are eligible for a total of 3.0 AMA PRA Category 1 CreditTM

HDCRS Day Agenda

8:00-9:00am Poster Setup & Viewing, Continental Breakfast

9:00-9:10am Introduction

9:10-9:40am Keynote Presentation: Charles Sabine and Mary Edmondson

9:40-10:10am Keynote Presentation: Ashwini Rao

10:10-10:20am Platform Presentation: Kevin Conley

10:20-10:40am Poster Viewing

10:40-11:10am Keynote Presentation: Pierre Tariot

11:10-11:20am Platform Presentation: Steven Hersch

11:20-11:50am Keynote Presentation: Blair Leavitt

11:50am-12:30pm Panel Discussion


Workshop Agenda

12:30-12:45pm Lunch

12:45-12:50pm Welcome: LaVonne Goodman

12:50-1:05pm Opening Remarks: Charles Sabine

1:05-1:20pm What Does it Mean to be Involved in Clinical Research: LaVonne Goodman

1:20-1:45pm Testimonials from Clinical Trial Participants

1:45-2:20pm Table Discussions

2:20-3:05pm Presentations from Table Discussions

3:05-3:15pm Summary: Charles Sabine

3:15-3:30pm Meet the Local Teams


Sixth Annual Huntington Disease Clinical Research Symposium 

Organized by the Huntington Study Group

Saturday, November 10, 2012
8:00a.m. - 12:30p.m.
Hyatt at Olive 8
Seattle, Washington 98101, U.S.A.

Huntington disease (HD), a devastating disease that robs people of their mobility, intellect, and sanity, has resisted attempts at treatment since it was first recognized in 1872 as a distinct genetic ailment.  Now, some 135 years later, clinical research into treatments that might alleviate symptoms and/or modify the disease are finally producing glimmers of hope for patients and families affected by the disease.

In recognition of the emerging focus on patient-oriented research, the Huntington Study Group (HSG), comprised of clinical researchers from North America, Europe, Australia, New Zealand and South America, will convene the Sixth Annual Huntington Disease Clinical Research Symposium, to be held on Saturday morning, November 10, 2012 at the Hyatt at Olive 8 in Seattle, Washington. Poster viewing will be held from 8:00-9:00am with the Symposium officially beginning at 9:00am.

The Symposium will feature keynote addresses by:

  • Charles Sabine, HD Advocate and Mary Edmondson, MD, Duke University Medical Center

  • Ashwini Rao, EdD, OTR, Columbia University

  • Pierre Tariot, MD, Banner Alzheimer's Institute

  • Blair Leavitt, MD, University of British Columbia

In addition to these keynote addresses, clinical scientists will be presenting their original research on relevant topics of interest to the HD community today. The Symposium will conclude with an open panel discussion, which will present audience members with the opportunity to interact with the day's presenters.

The Symposium is open to the HD community, the public and the press. Pre-registration by November 1st is free. On-site registration is $25.00 and is payable by cash or check at the event.

Scientific Program Committee Leadership
Andrew Feigin, MD, Chair
Feinstein Institute for Medical Research

Jody Corey-Bloom, MD, PhD, Co-Chair
University of California, San Diego


  Please join us after the Symposium for....

Working Together for HD Treatments:
A Clinical Research Workshop
Saturday, November 10, 2012 • 12:45-3:30pm
Presented by the:
Huntington Study Group Huntington's Disease Society of America Huntington's Disease Drug Works
The Focus: The importance of clinical research in the development of new treatments that make a difference for HD.  
Featured Speakers:  LaVonne Goodman, MD, Huntington's Disease Drug Works
                                        Charles Sabine, HD Advocate
                                        Research Participants
Also featuring an open audience discussion covering key questions on motivations and concerns about participating in clinical research and an opportunity to meet and speak with local clinicians. 

Everyone welcome. Lunch provided to all registered participants.