Contact:
Melanie Dillon
Birmingham Children's Hospital
melanie.dillon@bch.nhs.uk
or
Kim Hollander
The Oxalosis and Hyperoxaluria Foundation
kimh@ohf.org
Where
Birmingham Children's Hospital
Education Centre
Steelhouse Lane
Birmingham B4 6NH
Welcome! The OHF in association with Birmingham Children's Hospital is proud to present the Primary Hyperoxaluria Patient Meeting in the United Kingdom. The day is open to anyone affected by Primary Hyperoxaluria - patient, relatives, friends and clinicians.
Children can spend the day in the Play Centre at Birmingham Children's Hospital where they will be supervised by a team of fully-qualified Play Workers and entertained by a professional entertainer.
Refreshments will be provided free of charge throughout the day. There is no charge to attend but please register in advance for catering purposes.
EVENT PROGRAMME
10.00 - Welcome - Kim Hollander (Executive Director, OHF) and Sally Hulton (Nephrology Consultant, Birmingham Children’s Hospital)
10.30 - Understanding the Biological aspects of PH - Christopher Danpure (Professor of Molecular Cell Biology, University College London)
11.00 - The Diagnosis of Primary Hyperoxaluria - Gill Rumsby (Biochemistry Consultant, University College London)
11.45 - How Dialysis Works - Senior Renal Dialysis Sister (Birmingham Children’s Hospital)
12.15 - RaDaR and Registry update - Sally Hulton (Nephrology Consultant, Birmingham Children’s Hospital) and Melanie Dillon (Radar Administrator, Birmingham Children’s Hospital)
12.30 - 13.30 Lunch
13.30 - Liver and kidney transplants - Khalid Sharif (Consultant Transplant Surgeon, Birmingham Children's Hospital)
14.00 - Management of kidney Stones - Daron Smith (Urology Surgeon, University College London Hospital)
14.30 - Drug treatments for PH - Bernd Hoppe (Nephrology Consultant, University of Bonn, Germany)
15.00 - Close - Kim Hollander (Executive Director, OHF) and Sally Hulton (Nephrology Consultant, Birmingham Children’s Hospital)
Travel & Accomodation
Travel
- New Street train station is a 12 minute walk away from the hospital and Snow Hill a 5 minute walk.
-A large number of buses serve the city centre. For routes and stop locations visit www.networkwestmidlands.com
- Birmingham Airport is a 20 minute drive from the Hospital or a 10 minute train journey to New Street Station. Taxi ranks and car hire firms are available in the main arrivals building of the airport.
Accommodation
- The Thistle Hotel at St Chad’s is a 5 minute walk from the hospital and Hotel Du Vin is an 8 minute walk away.
- For a wide range of City Centre hotels visit www.visitbirmingham.com
For More Information
Please contact Melanie Dillon at melanie.dillon@bch.nhs.uk.