2015 Atlanta, Georgia   

        CS Logo

Thank you to our Sponsor!

Luke O'Brien Foundation


Thursday July 23, 2015 at 3:00 PM EDT
Sunday July 26, 2015 at 12:00 PM EDT

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Le Méridien Atlanta Perimeter 
111 Perimeter Center
Atlanta, GA 30346

 Driving Directions 

    Georgia On My Mind...




Georgia is known as the Peach State.  Because of this, we have a lot of streets with the name Peachtree...              





We hope you can

make it to the Peach State

for conference this year! 

If you can't, we hope you will still be a real part of conference by sending us a picture of your child.  Please include name, date of birth, age; if they have passed, include age and dates.  This way, other families may learn about your child and remember them during the entire conference! 

This year we will have a peach tree on the wall and will put photos of our kids on cut-out peaches - 5x7 size peaches! 

  A suggested $10.00 donation would be greatly appreciated (but not required).

We started this PHOTO tradition in 2005 and continue it each year.  It is very special to all attendees to look at the pictures and names of everyone who is thinking of us during the conference.  They too become discussion topics and remain in our thoughts; and when you're in

our thoughts you are in our prayers!

Please send pictures as an attachment via email to: lisajsweeting@gmail.com or snail mail a 5x7 photo to:


Lisa Sweeting

3385 Jones Ferry Lane

Johns Creek, GA 30022


Georgia On My Mind... 







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Atlanta, Georgia    

2015 International Family Medical Conference for Cockayne Syndrome

INFORMATION about the Cockayne Syndrome Family Conference

WELCOME TO A 4-day/3-night opportunity to meet, connect with, and learn from other families, hear speakers discussing topics of interest to our group, and have fun!  As in the past, through our partnership with the Luke O’Brien Foundation, funding is provided for Share & Care Cockayne Syndrome Network to cover 1 room for 3 nights per each attending Share & Care CS family.  Parking is free at the hotel.  The conference has no registration fee, but you must cover your own travel costs to reach the conference location.

Hotel Check-in Time:  3:00pm daily

Please note that if you are arriving on Thursday, 7/23 and your room is not ready, the hotel will be happy to store your baggage for you until your room is available.

Hotel Check-out Time: 12:00pm daily

If you need to make special arrangements for checking in early, checking out late or any additional items for the weekend you can indicate this via email to lisajsweeting@gmail.com


All attending families will need to come to the on-site registration at Le Méridien Atlanta Perimeter in order to check-in, collect your conference packet & receive your name badges for each family member.  The conference registrations will be held at the following times:

Thursday, July 23:  10:00am—12:00pm


The Share & Care CS Network generously covers most of the conference costs for attending families. These costs are outlined below. There is no fee to register or to attend the conference. It is open to all families of children with Cockayne Syndrome.

Hotel Rooms

The Share & Care CS Network will pay for ONE room (including tax) per CS family on Thursday (7/23/15), Friday (7/24/15) and Saturday (7/25/15) – check out on Sunday (7/26/15).  Any charges for additional or upgraded rooms and/or extra nights will be paid by families, at their own expense.  Please note that booking your hotel room will be made through Share & Care.  After you finish registering to attend the conference, we will add you to our room block and send a confirmation approximately four weeks before the conference.   If you contact the hotel directly, they will not reserve a room for you under our block.  

 All rooms come with King bed(s), 1-2 TVs depending on if room is suite or classic room.  Classic rooms come with a chaise lounge, working desk and one TV.  Suites come with two small couches, working desk and two TVs.  There will be minibars in the room, empty, for your use.  Keep in mind the minibars do not get as cold as a real refrigerator.  You may request a complimentary mini frig for medicinal uses only. If you need a crib (no charge) or roll-away bed ($25), please request during the registration process.  Feel free to discuss any special requests with Lisa Sweeting.


The Share & Care Cockayne Syndrome Network will generously cover (8) meals for our CS families during the conference weekend. All meals are served buffet style.  Meals include Thursday dinner, Friday breakfast, Friday lunch, Friday dinner, Saturday breakfast, Saturday lunch, Saturday dinner and Sunday breakfast. 

We assume your entire family group will be at each meal.  If you know you will not be attending certain meal(s) please let us know in advance by emailing Lisa Sweeting.  All meals are paid for prior to conference and we want to be good stewards of SCCS funds.

  • Share & Care will pay for conference meals for up to four (4) adults per attending family. Please note that the four (4) adults allowed include:  parents, grandparents, siblings 23 or older, and any other relatives and/or non-relatives who are attending to assist a CS child.
  • Share & Care will pay for conference meals for all Cockayne Syndrome children and their siblings age 22 years or less. Any siblings 23 years or older who are attending the conference will be counted as one of the four (4) adults in your group.
  • Any extra (non-sibling) children or adults beyond the (4) adults, will incur the following meal surcharge fees.  Please note that children 5 & under eat FREE.

Meal Time

Price per Adult

Price per Child

Thursday Dinner  

$30.00 per adult (14 & up)

$11.00 per child (6-13)

Friday Breakfast  

Included with room


Friday Lunch  

$19.00 per adult (14 & up)

$9.50 per child (6-13)

Friday Dinner  

$32.00 per adult (14 & up)

$11.00 per child (6-13)

Saturday Breakfast  

Included with room

Saturday Lunch  

$19.00 per adult (14 & up)

$9.50 per child (6-13)

Saturday Dinner  

$34.00 per adult (14 & up)

$14.00 per child (6-13)

Sunday Breakfast  

Included with room


MEAL SURCHARGES: Payment for the meal surcharge(s) should be mailed by June 15, 2015. Please make checks payable: Le Méridien Atlanta Perimeter.  Please contact Lisa Sweeting (lisajsweeting@gmail.com or 770-865-4839) for any information and/or the total amount due on your meal surcharges.


Neilan Brooks Beals

Robbins Neidernhofer

Please be looking for a "wish" list of conference donation items!   It will be sent out in the next few weeks.  Please share this list with any of your family or friends that may want to help with the conference donations.


The 2015 SCCS Conference Commitee

Haylee Carroll

Jackie Clark

Marie Haigler

Alejandra McKinney

Karen Stillwell

Lisa Sweeting – Conference Contact, 770-865-4839

Jill Zimmerman - Conference Coordinator 

Register Now for the 16th International CS Family Conference in Atlanta, Georgia July 23-26!


Share & Care Conference Contact: Lisa Sweeting (Max's Stepmom)