Contact
Mari- Elaina GarciaJonah's Just Begun-Foundation to Cure Sanfilippo Inc.
mari@jonahsjustbegun.org
*What's this about a Raffle? Check out both of these amazing prizes.
Autographed Moe Willems Book
Don't miss the chance to win a first edition, autographed copy of The Thank You Book by Park Slope's very own Mo Willems! Sadly, TheThank You Book is the last book Mo will be writing in the beloved Gerald and Piggie Series. $20 gets you 5 entries into the raffle and we will be picking 2 winners!
Court 16
This package from Court 16 has so much to offer, it is just too good not to take a chance on. The winner of this prize will walk away with the following:
- Standard Membership which includes a 12-month Membership & custom Lacoste polo + hoodie. Priority booking for all classes and camps; member rates for Friday movie nights, camps and parties; complimentary parent membership and member rates on adult classes. More info here: http://www.court16.com/membership/
- Three 45-Minute group classes
- One full day of camp
You don't have to be in attendance to win. Just purchase raffle tickets on the registration page.
Calling All Superheroes!
Our Lakeside event is back and better than ever, SUPER in fact. Please join us for "Heroes Among Us", July 23rd at the LeFrak Center at Lakeside.
This year we wanted to pay tribute to the heroes that walk among us in everyday life. From the doctors that diagnose and keep our children healthy, to the community that comes together to support JJB & Rare Disease; they are all heroes in our eyes.
While the children enjoy all of the fun activities you will have a chance to bid on must-have auction items from your favorite local businesses, including a pajama party 10-pack from NY Kids Club, a dinner at Blue Ribbon Restaurant, a free class at the Hootenanny Art House/Music Together, and many, many more! All proceeds will go to help fund life-saving treatments for children with Sanfilippo Syndrome.
Just like last year, "Heroes Among Us" will be held at LeFrak Center Lakeside in beautiful Prospect Park. Tickets will include a full lunch * and access to these fun activities:
- Roller Skating
- Face Painting
- Splash Pad
- Silent Auction, Including All of Your Favorite Local Park Slope Restaurants, Shops, Activities, and More!
In addition, this year you will get the chance to take a picture with some of your favorite Superheroes. See you there!!!
*Lunch will include non-alcoholic beverages. Beer and wine can be purchased next door at the Bluestone Cafe.
Last year we had a packed house, so don't forget to buy your tickets early for our early-bird price*.
Adult Ticket:$40
Children 5 years and older Ticket:$35
Children under 5 FREE!
Raffle Tickets: 5 entries for $20** (see side bar for details)
*Ticket prices will go up July 17th
What exactly are we raising money for?
JJB is dedicated to the research and development of treatments for the Ultra Rare Disease Sanfilippo Syndrome. Specifically we need to raise $17,598.23 to produce a viral vector that will be used in our ongoing gene therapy research.
Can't make our event?
You can still be a hero for rare disease. Donate HERE and watch as our real time thermometer rises toward our goal.
A very Special THANK YOU to all our sponsors who made this event possible.
