Contact:
Jenn Pino, National Events Coordinator Canadian PKU & Allied Disorders Inc.
jenn.pino@canpku.org
Registration:
To register, scroll down to the bottom of the page and click on the "REGISTER NOW!" button.
When
Saturday, April 7th, 9 am to 5 pm
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Where
Child and Family Research Institute
950 West 28th Avenue
Vancouver, BC V5Z 4H4
Driving Directions
Pay parking throughout BC Children’s Hospital or on West 28th Avenue
A group rate has been secured at the Sheraton Vancouver Airport Hotel (7551 Westminster Hwy, Richmond). A Traditional Queen room can be booked for $175 per night (plus taxes). Upgrades available: Club Floor King (+$50) with access to the Sheraton Club Lounge.
Reservations can be made by calling
1-800-663-0299 and asking for “In-house Reservations”. To receive the special rate, please mention “Canadian PKU and Allied Disorders”. Alternatively, a reservation can also be made by emailing reservations@sheratonvancouverairport.com . Room rate includes complimentary overnight parking, fitness club/pool access and wireless internet. Book early as the rate is subject to availability.
Join us for our 2nd Annual, ALL AGES, camp! September 28 to 30, 2018 @ Douro-Dummer, ON.
Register by Thursday, March 1, 2018
to take advantage of the EARLY BIRD SPECIALS.
For more information, click here or visit CanPKU.org/CampMagniPHEque.
Travel Scholarships are also available! Click here for Eligibility Criteria.
9:00 am to 5:00 pm | Chan Auditorium
Join us at our 2018 event in Vancouver for a day of engaging speakers and discussions featuring:
Kathleen Duddy, RN, MSN, CPNP-PC and Keiko Ueda, MPH, RD
Another Interactive discussion with Adults, Children and Parents living with PKU moderated by Kathleen and Keiko of the BDCS Clinic at BC Children’s Hospital
Brian Goetz, MD
A PKU adult and recent Medical School Graduate who will discuss his life with PKU and his experiences with the investigational drug Pegvaliase (former name Peg-PAL) during his clinical trial.
Tanya Chute-Nagy
CanPKU’s vice president with updates on CanPKU, Camp MagniPHEque, Kuvan, and the Disability Tax Credit
Nicole Pallone
The idea of switching to a Simplified Diet can be terrifying for anyone who has spent a lifetime counting every mg of phe. With BCCH dieticians, CanPKU Director, Nicole Pallone, helped develop a slow steady switch to reduce the anxiety to the family by recording the patient’s phe levels throughout each phase and will share these ideas and results with you. Nicole will also provide a quick overview of the two PKU research projects she has partnered with Beth Potter and the University of Ottawa on, and share with you how you can help in this research.
+ More Time to Discuss With Your Fellow Peers Other Issues Important to You During the Breakout Sessions
As usual we will provide on-site childcare at no additional charge for registered children 12 and under, have several metabolic vendors present with samples, and we will provide PKU-friendly snacks and lunch.
Travel Scholarships are available to assist families in attending our event. The deadline to apply is Sunday, March 12, 2017. Please click here for more information and Eligibility Criteria!
The Education and Networking Event, including meals, childcare, access to vendors and presentations, requires a nominal fee to confirm participation and defray the costs of hosting the event. If you wish to receive the CanPKU Member discount, please sign up for (or renew) a membership by clicking here, and take note of your confirmation code. An annual membership fee is only $20 so this does indeed save you money!
CanPKU Member: $15, plus $10 per additional guest
Non Member: $50, plus $10 per additional guest.
(To enquire about the status of your membership, please email Jenn at jenn.pino@canpku.org.)
REGISTER NOW as SPACE IS LIMITED
THANK YOU AND WE LOOK FORWARD TO SEEING YOU IN VANCOUVER!
Please note: The agenda is subject to change at anytime; speakers and topics listed are confirmed at time of publication; & there is no discount for attending only part of the event.