Friday, November 9, 2018 at 8:00 AM EST
Saturday, November 10, 2018 at 1:00 PM EST

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DoubleTree Hotel Silver Spring 
8727 Colesville Rd
Silver Spring, MD 20910

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Connie Lee 
Angioma Alliance 

2018 Angioma Alliance National Patient Conference 

Please join us for two days of presentations and conversations about cavernous angioma research and treatment. This meeting is happening concurrently with the International Scientific Meeting, and there will be a shared session and other opportunities to interact with the researchers. 

Find a full agenda at http://angioma.org/documents/DCPatientMeeting2018Agenda.pdf 

Highlights include:

  • With the researchers, attend a joint keynote presentation by Dr. Rustam Al-Shahi Salman;
  • Hear presentations geared toward patients and their families from leading clinicians and researchers including Dr. Issam Awad, Dr. Yashar Kalani, Dr. Kelly Flemming Dr. Stacy Suskauer, Dr. Amy Akers, Dr. Connie Lee and Robyn Brickel, MA, LMFT;
  • Hear presentations by pharmaceutical companies who have medications in development to treat cavernous angioma;
  • Have an opportunity to meet Scientific Meeting attendees over lunch and at breaks; 
  • Meet other Angioma Alliance members and share stories and tools.

This is a unique opportunity to interact with the research community and to learn about the patient and family role in advancing the search for better treatments. Our International Scientific Meeting attracts every major research laboratory in the world, as well as many leading clinicians.

Early registration through October 7 is $70/first registrant, $45/each additional registrant.
Registration from October 8-31 is $80/first registrant, $55/each additional registrant.
Late registration from November 1-9 is $100/first registrant, $75 each additional registrant

Unfortunately, we will not be able to offer childcare at this event. 


Rooms at the DoubleTree by Hilton Hotel - Silver Spring, Washington, DC are available for a reduced room rate of $169 USD per night for single/double occupancy.    

To make hotel reservations:

  • Reservations by Phone - call the reservations department at: 301-563-3804. Please ensure to reference the CCM Scientific Meeting Group and AAM Group Code when making reservations.
  • Reservations online - click HERE

**To receive the discounted rate, your reservation must be completed by October 7th, 2018.