When

Sunday, June 9, 2019 from 7:30 AM to 12:00 PM PDT
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Where

Sutter Lawn Tennis Club and Surrounding Streets
3951 N Street
Sacramento, CA 95816

Driving Directions 

Race Day Details

Find information on the course distances (vary by age group) and map, where to go when, what to bring, etc. via: https://files.constantcontact.com/7471f887701/d53a31a3-e51c-42f2-8aab-3277faff182e.pdf

Sponsorship Opportunities

We would be honored if you or your business would consider a sponsorship opportunity for this event.  Sponsorships are available from the $100 level to the $5,000 level. Those sponsoring a minimum of $300 will have their logo printed on the back of the t-shirts and will be able to hang a banner (if you don’t have a banner, one will be made up for you). Those sponsoring less than $300 will have their name listed on the back of the t-shirt. Sponsorship commitments are requested by Thursday, May 23rd. See sponsorship packet for more information via https://files.constantcontact.com/7471f887701/1a84446a-5a6d-4fe9-bee9-0b87faa7dcdf.pdf

Make your sponsorship payment here. Include "WSS Tri Sponsor" in the note section.


Event Contact

Libby Woolford
916-502-2120
Libby.Woolford@gmail.com

3rd Annual WSS Kids Triathlon 

What is Wiedemann-Steiner Syndrome?  Wiedemann-Steiner syndrome is a rare genetic disorder resulting from mutations in the MLL (aka KMT2A) gene on the long arm of chromosome 11. The syndrome, originally described in 1989 through recognition of similar features, was not officially verified until 2012 through whole exome sequencing.  There are currently about 750 people that have been diagnosed with WSS worldwide.  WSS is often related to global developmental delays, sleeping difficulties, feeding and digestion complexities, atypical facial features, short/petite stature, hypotonia, dental issues, hairy elbows, long eyelashes, etc.  Those affected by WSS endure hours of physical, speech, behavioral, occupational, and music therapies and academic supports every week.  In their first few years of life, WSS children experience far more medical procedures and surgeries than most of the population will experience in a lifetime.

What is the Wiedemann-Steiner Syndrome Foundation?  The Wiedemann-Steiner Syndrome (WSS) Foundation was founded in 2016 and serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. Together we advocate for comprehensive research with meaningful discoveries and connect the WSS community through thoughtful engagement. http://www.wssfoundation.org/

What will the money raised from the Triathlon be applied towards?  In 2016, the Wiedemann-Steiner Syndrome Foundation set out to raise $250,000 to initiate crucial research for Wiedemann-Steiner Syndrome. With the help, commitment and generosity of the friends and family of those affected by WSS, we reached that initial goal in November of 2018. While our first monetary benchmark has been reached, it is not a finish line, rather a launching point. The Foundation’s work has only just begun. In 2019, the WSS Foundation will be able to fund multiple mouse projects to gather comprehensive baseline data on WSS. As baseline data is collected, the Foundation will initiate research on particular symptoms affecting the WSS population. Disease specific research will help doctors, educators, and parents better understand WSS and will hopefully lead to pharmaceutical companies taking an interest in developing treatments for WSS patients; ultimately allowing our WSS Warriors to reach their greatest potential. The Foundation also supports multiple regional gatherings around the world, including its annual international conference. These gatherings allow families an opportunity to be around those that “get it”, an experience un-paralleled by any other.

Why should you and your child participate in the WSS Foundation Kids Triathlon?  The WSS Foundation Kids Triathlon is a perfect mix of fun, exercise, and promotion of inclusiveness.  Your child’s participation in the event and seeking out sponsorships recognizing their accomplishments on June 9th will not only be self-rewarding, but will provide a sense of community involvement while helping a tremendous cause. 

Volunteer on the Day of the Triathlon This event would not be possible without volunteers.  We utilize about 75 volunteers on the day of the event. If you would like to help, there is a volunteer interest section on the registration form (via the register now button).

Can't Make It? If you are unable to come to our event, but would like to support this worthy cause, you may make a donation here: