When

Thursday, April 11, 2019 at 3:00 PM EDT
-to-
Sunday, April 14, 2019 at 12:00 PM EDT

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Where

Raleigh Marriott Crabtree Valley

4500 Marriott Dr
Raleigh, NC 27612

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Contact

Becky Benson
National Tay-Sachs & Allied Diseases Association (NTSAD)
(617) 277-4463
becky@ntsad.org

NTSAD's 41st Annual Family Conference

The 41st NTSAD Annual Family Conference, April 11 to April 14, 2019 in Raleigh, North Carolina, will Empower, Support and Connect hundreds of families coping with all forms of Tay-Sachs, Sandhoff, Canavan and GM-1. Families connect with others who understand, learn about the latest research and discuss health management.

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Family / Attendee Information

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  • Fee

    Type Fee
    $320.00
    $150.00
    No Charge
    $125.00
    $50.00
    No Charge

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What about the Kids?

  • We are pleased to offer complimentary childcare for the entire family! In Camp Snuggle for Affected Children our team of beloved nurses will lovingly care for your child so you can attend sessions. With skilled care they will tend to your child’s every need. Camp Sunshine for siblings is a fun and safe place for kids to enjoy just being a kid! Special off-site field trips for kids from ages 10 to 17 years old.

Camp Snuggle for Affected Children

  • To plan properly we must know in advance if your child(ren) will use the Camp Snuggle's child care or if you have made other arrangements. You are welcome to bring your affected child to sessions. Other families will be delighted to lend a hand if needed!

Camp Sunshine for Siblings

  • Just like the parents, siblings are often the only one in their community with a special or angel sibling. At Camp Sunshine siblings under 10 years old enjoy games, arts-n-crafts and more all while being with other kids just like them! Our professional childcare providers set the industry standard for safety. To plan properly we must know in advance if your child(ren) will use the child care or if you have made other arrangements.

Sibling Youth Group (Ages 10-17)

  • We are glad we can offer siblings between the ages of 10 and 17 years old an opportunity to connect with their peers while having fun on retreats on Friday and Saturday of the conference. Please indicate if you have a pre-teen/teen who will join the group.

Support Helping Hand

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Helping Hand Raffles

The Helping Hand Raffle helps families in need attend the Annual Family Conference. A book of 6 chances is only $10! Cash prizes: $1,000, $500 and $250. Drawing on Saturday, April 6th during the Celebration Dinner.

100 $10.00 each
$9,999.99

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