Thursday, June 1, 2023 at 11:00 AM EDT
Sunday, June 4, 2023 at 10:00 PM EDT

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Hyatt Regency Reston

1800 Presidents St
Reston, VA 20190

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Becky Benson

NTSAD's 45th Annual Family Conference

The 45th NTSAD Annual Family Conference, June 1-4 in Reston, Virginia will Empower, Support and Connect families coping with all forms of Tay-Sachs, Canavan, GM1, and Sandhoff. Families connect with others who understand, learn about the latest research, and discuss both health management and bereavement.

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Attendee Information

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  • Please Check ALL meals you will be attending.

  • Please check your preferred t-shirt size. We will do our best to accommodate this request.

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  • Fee

    Type Fee
    No Charge

For other family members and attendees

You may add a maximum of 10

Additional Information

  • We are pleased to offer complimentary childcare for the entire family! In Camps Snuggle and Active for Affected Children our team of beloved nurses will lovingly care for your child so you can attend sessions. These experienced healthcare professionals will tend to your child’s every need. Camp Sunshine for siblings is a fun and safe place for kids aged 0 - 9 to enjoy just being a kid! Special supervised off-site field trips and youth group activities for kids from ages 10 - high school.

  • I understand that NTSAD may use both videography and photography during the Annual Family Conference and by attending this event I give my authorization to be included in both print and digital media.

Camps Snuggle and Active for Affected Children

  • To plan properly we must know in advance if your child(ren) will use the Camp Snuggle's childcare or if you have made other arrangements. You are welcome to bring your affected child to sessions. Other families will be delighted to lend a hand if needed!

Camp Sunshine for Siblings (Aged 0 - 9)

  • Just like the parents, siblings are often the only one in their community with a special or angel sibling. At Camp Sunshine siblings aged 0 - 9 years old enjoy games, arts-n-crafts, and more while being with other kids just like them! Our professional childcare providers set the industry standard for safety. To plan properly we must know in advance if your child(ren) will participate in Camp Sunshine or if you have made other arrangements.

Sibling Youth Group (Aged 10 - High School)

  • We are pleased to offer siblings between the ages of 10 through high school senior an opportunity to connect with their peers while having fun on retreats on Friday and Saturday of the conference. Please indicate if you have a pre-teen/teen who will join the group.



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