5th Annual Walkathon for CDKL5 Research!

Saturday August 3, 2013 

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Saturday August 3, 2013 at 8:00 AM 
Saturday August 3, 2013 at 12:00 PM 

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Richmond High School track 
35320 Division
Richmond, MI 48062

Driving Directions 


Katheryn Elibri Frame




Janet Baker




5th Annual Walkathon for CDKL5 Research 

Please join us for the 5th Annual Walkathon for CDKL5 Research!

CDKL5 is a devastating, rare genetic disorder that effects girls and boys starting in infancy, and deprives them of any kind of a normal life.  This disorder causes relentless seizures, severe neuro-developmental impairment, and many other medical problems, such as blindness, feeding difficulties and scoliosis.  Most of these children will never walk, talk, or feed themselves.  They are dependent on others for everything!

Please, help us find a cure!  We can't do it without you!  

In the past year, IFCR has been engaged in critical research projects thanks to your generous support, but we can't stop yet.  There is so much more to do, and we have an abundance of hope....together we can find a cure for our children!

All proceeds go directly to research, and your contributions are 100% tax deductible.

We encourage you to bring your family, friends, co-workers and acquaintences to help us celebrate our children and raise awareness of CDKL5.  There will be lots of family fun and activities, and lots of wonderful raffle prizes!  We are raffling off an Apple iPAD mini, don't miss your chance to win!!!

When: Saturday, August 3th, 2013  (rain or shine)

Where:  Richmond, MI at the high school track

Time:  8am - 12pm

Who: All are welcome!

This event is free for all who attend,

but DONATIONS are deeply


 Event Schedule

 8:00am   Registration and Continental breakfast (coffee, breakfast pastries)

 9:00am   Walk begins

 10:00am   Light refreshments and lots of fun

 Raffle - great prizes, including the Apple iPAD mini!

Bounce house

 Live music

 Clown and balloons

 Face painting

Pizza, drinks and dessert!

11:15am     Raffle drawings