Where
UnityPoint Education and Research CenterIowa Methodist Medical Center
Kelley Conference Room
1415 Woodland Avenue
Des Moines, IA 50309
Driving Directions
Contact
Roxanne Cogil, Director of Iowa Epilepsy ServicesEpilepsy Foundation of North/Central Illinois, Iowa, Nebraska
515-238-7660
efiowa@efncil.org
Children's
Therapy/Education
Session
(Children's Session is Full)
During the conference, we will be offering a Children's Therapy/Education Session for children with epilepsy, siblings of children with epilepsy and children who have a parent with epilepsy.
The Children's Therapy/Education Session will run simultaneously with the conference and is at the same location. The program will be for ages 4-12. The adult:child ratio will be 1:5; however, you may send a caregiver to assist your child if they need one-on-one assistance. Parents will be responsible for their children during lunch. Enrollment limited to first 25 children registered. Additional Studio E paperwork and releases will need to be completed prior to the conference.
The morning therapy session will be Studio E: The Epilepsy Art Therapy Program and will help children work their emotion, anxiety and stress through art. Studio E provides children an opportunity to express emotions through fun and engaging activities. It builds a sense of community and connection, gives a voice to kids with epilepsy and helps kids connect with other kids their age who also experience epilepsy. Studio E is a program in partnership with the Epilepsy Foundation of America and Lundbeck.
The afternoon educational session will be hands-on science activities with the Science Center of Iowa's outreach tream, which will include the following programs: From Rocks to Gemstones, Super Human You and Enter the Universe with the portable planetarium! The Science Center of Iowa engages and inspires Iowans along their journey of lifelong science learning.
2015 Registration
This is our annual statewide family & caregiver epilepsy education conference! We welcome all individuals who are interested in the research, treatments and resources related to epilepsy. We will be holding a community resource fair & lunch will be served. Please see the agenda below for the day's events and introductions of our keynote speakers.
EF Iowa is thrilled to have the opportunity to hand out free epilepsy medical ID bracelets/necklaces at the event. We also have a limited amount of funding to reimburse for travel/lodging expenses for those traveling more than 50 miles. Contact the Epilepsy Foundation's Iowa office for additional details on how to apply for travel/lodging reimbursement.
8:00 AM Registration
8:45 AM Welcome, Darrell Chiavetta, President of EF Iowa
9:00 AM Dr. Tracy Dixon–Salazar, Associate Research Director, CURE (Citizens United in Research for Epilepsy): Precision Medicine in Epilepsy (including the Epilepsy Genetics Initiative)
10:00 AM Break/Exhibits
10:30 AM Teens Speak Up Report – Andrew & Simon Clark
10:45 AM Dr. Wendy Zadeh, Section Chief of Neurology, Broadlawns Medical Center: Update on Seizure Management and Treatments
11:45 AM LUNCH/Exhibits
BREAKOUT SESSIONS
12:45 PM
Room 1: Seizure Detection Devices – (Dr. Tracy Dixon-Salazar, CURE)
Room 2: Non-Epileptic Seizures (Dr. Wendy Zadeh, Broadlawns Medical Center)
Room 3: EF Iowa Programs & Services/Seizure Recognition & First Aid (Roxanne Cogil, EF Iowa)
1:45 PM
Room 1: School: IEP/504 Plans (Fred Kinne, Dept. of Ed. and Paula Connolly, ASK Resource Center)
Room 2: Advocacy 101: A Workshop (Threase Harms, Advocacy Strategies and Dale Todd, EF Iowa)
Room 3: Employment & Epilepsy (Cyndy Miller, Senior Staff Attorney, Disability Rights Iowa)
2:45 PM Connection Groups
Room 1: Children with Intractable Epilepsy (Dale Todd - facilitator)
Room 2: Newly diagnosed with epilepsy (Brienna Decker - facilitator)
Room 3: Adults with Epilepsy (Darrell Chiavetta - facilitator)
3:30 PM Depart